Publications

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1687 Publications visible to you, out of a total of 1687

Abstract

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Authors: Erik Borker, Alexandros Stamatakis

Date Published: 1st Sep 2024

Publication Type: Master's Thesis

Abstract

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Authors: Jan Henneco, Fabian R. N. Schneider, Saskia Hekker, Conny Aerts

Date Published: 1st Sep 2024

Publication Type: InProceedings

Abstract

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Authors: Alexandra Kozyreva, Luke Shingles, Petr Baklanov, Alexey Mironov, Fabian R. N. Schneider

Date Published: 1st Sep 2024

Publication Type: Journal

Abstract

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Authors: D. A. Prokhorov, S. H. Lee, S. Nagataki, J. Vink, D. Ellison, G. Ferrand, D. Patnaude, F. Roepke, I. Seitenzahl, P. Slane, Cta, K. Abe, S. Abe, A. Acharyya, R. Adam, A. Aguasca-Cabot, I. Agudo, J. Alfaro, N. Alvarez-Crespo, R. Alves Batista, J. P. Amans, E. Amato, F. Ambrosino, E. O. Angüner, L. A. Antonelli, C. Aramo, C. Arcaro, L. Arrabito, K. Asano, J. Aschersleben, H. Ashkar, L. Augusto Stuani, D. Baack, M. Backes, C. Balazs, M. Balbo, A. Baquero Larriva, V. Barbosa Martins, U. Barres de Almeida, J. A. Barrio, D. Bastieri, P. I. Batista, I. Batković, R. W. Batzofin, J. R. Baxter, G. Beck, J. Becker Tjus, L. Beiske, D. Belardinelli, W. Benbow, E. Bernardini, J. Bernete Medrano, K. Bernlöhr, A. Berti, V. Beshley, P. Bhattacharjee, S. Bhattacharyya, B. Bi, N. Biederbeck, A. Biland, E. Bissaldi, O. Blanch, J. Blazek, C. Boisson, J. Bolmont, G. Bonnoli, P. Bordas, Z. Bosnjak, F. Bradascio, C. Braiding, E. Bronzini, R. Brose, A. M. Brown, F. Brun, G. Brunelli, A. Bulgarelli, I. Burelli, L. Burmistrov, M. Burton, T. Bylund, P. G. Calisse, A. Campoy-Ordaz, B. K. Cantlay, M. Capalbi, A. Caproni, R. Capuzzo-Dolcetta, C. Carlile, S. Caroff, A. Carosi, R. Carosi, M. S. Carrasco, E. Cascone, F. Cassol, N. Castrejon, F. Catalani, D. Cerasole, M. Cerruti, S. Chaty, A. W. Chen, M. Chernyakova, A. Chiavassa, J. Chudoba, C. H. Coimbra Araujo, V. Conforti, F. Conte, J. L. Contreras, C. Cossou, A. Costa, H. Costantini, P. Cristofari, O. Cuevas, Z. Curtis-Ginsberg, G. D’Amico, F. D’Ammando, M. Dadina, M. Dalchenko, L. David, I. D. Davids, F. Dazzi, A. De Angelis, M. de Bony de Lavergne, V. De Caprio, G. De Cesare, E. M. de Gouveia Dal Pino, B. De Lotto, M. de Lucia, R. de Menezes, M. de Naurois, E. de Oña Wilhelmi, N. De Simone, V. de Souza, L. Del Peral, M. V. del Valle, E. Delagnes, A. G. Delgado Giler, C. Delgado, M. Dell’aiera, R. Della Ceca, M. Della Valle, D. Della Volpe, D. Depaoli, A. Dettlaff, T. Di Girolamo, A. Di Piano, F. Di Pierro, R. Di Tria, L. Di Venere, C. Dı́az-Bahamondes, C. Dib, S. Diebold, R. Dima, A. Dinesh, A. Djannati-Ataı̈, J. I. Djuvsland, A. Dominguez, R. M. Dominik, A. Donini, D. Dorner, J. Dörner, M. Doro, R. d. C. dos Anjos, J. L. Dournaux, D. Dravins, C. Duangchan, C. Dubos, L. Ducci, V. V. Dwarkadas, J. Ebr, C. Eckner, K. Egberts, S. Einecke, D. Elsässer, G. Emery, M. Escobar Godoy, J. Escudero, P. Esposito, D. Falceta-Gonçalves, V. Fallah Ramazani, A. Faure, E. Fedorova, S. Fegan, K. Feijen, Q. Feng, F. Ferrarotto, E. Fiandrini, A. Fiasson, V. Fioretti, L. Foffano, L. Font Guiteras, G. Fontaine, S. Fröse, S. Fukami, Y. Fukui, S. Funk, D. Gaggero, G. Galanti, G. Galaz, Y. A. Gallant, S. Gallozzi, V. Gammaldi

Date Published: 1st Sep 2024

Publication Type: InProceedings

Abstract

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Authors: J. M. Pollin, S. A. Sim, R. Pakmor, F. P. Callan, C. E. Collins, L. J. Shingles, F. K. Röpke, S. Srivastav

Date Published: 1st Sep 2024

Publication Type: Journal

Abstract (Expand)

Introduction: NFDI4Health is a consortium funded by the German Research Foundation to make structured health data findable and accessible internationally according to the FAIR principles. Its goal iss. Its goal is bringing data users and Data Holding Organizations (DHOs) together. It mainly considers DHOs conducting epidemiological and public health studies or clinical trials. Methods: Local data hubs (LDH) are provided for such DHOs to connect decentralized local research data management within their organizations with the option of publishing shareable metadata via centralized NFDI4Health services such as the German central Health Study Hub. The LDH platform is based on FAIRDOM SEEK and provides a complete and flexible, locally controlled data and information management platform for health research data. A tailored NFDI4Health metadata schema for studies and their corresponding resources has been developed which is fully supported by the LDH software, e.g. for metadata transfer to other NFDI4Health services. Results: The SEEK platform has been technically enhanced to support extended metadata structures tailored to the needs of the user communities in addition to the existing metadata structuring of SEEK. Conclusion: With the LDH and the MDS, the NFDI4Health provides all DHOs with a standardized and free and open source research data management platform for the FAIR exchange of structured health data.

Authors: Xiaoming Hu, Haitham Abaza, Rene Hänsel, Masoud Abedi, Martin Golebiewski, Wolfgang Müller, Frank Meineke

Date Published: 30th Aug 2024

Publication Type: InProceedings

Abstract (Expand)

The National Research Data Infrastructure for Personal Health Data (NFDI4Health) uses Local Data Hubs (LDHs) to manage locally research studies, documents and sensitive personal data to support controlledort controlled data sharing. While research data management (RDM) systems facilitate the storage and preparation of data and metadata as well as organizational access, they often lack support for interoperability standards of the application domain. To support the exchange with external registries of research studies, we chose 17 attributes to characterize the most relevant aspects of clinical trials (in the following named “metadata profile”). We implemented the metadata profile in the RDM system FAIRDOM SEEK using core attributes and SEEK’s extended metadata feature and created a mapping conforming to the Health Level 7 Fast Healthcare Interoperability Resources (FHIR) standard version R4. Finally, we implemented a prototype application interface for exports in FHIR-JSON format. We plan to extend the interface to serve central registries and support specific FHIR Implementation Guides from various use cases.

Authors: Matthias Löbe, Xiaoming Hu, Sophie A.I. Klopfenstein

Date Published: 22nd Aug 2024

Publication Type: Journal

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