NFDI4Health Local Data Hubs for Finding and Accessing Health Data

Abstract:

To support federated data structuring and sharing for sensitive health data from clinical trial, epidemiological and public health studies in the context of the German National Research Data Infrastructure for Personal Health Data (NFDI4Health), we have developed Local Data Hubs (LDHs) based on the FAIRDOM-SEEK platform. Those LDHs connect to the German Central Health Study Hub (CSH) to make the health data searchable and findable. This decentralised approach supports researchers to make health studies with their data FAIR (Findable, Accessible, Interoperable and Reusable), and at the same time fully preserves data protection for sensitive data.

SEEK ID: https://publications.h-its.org/publications/1797

Filename: NFDI4Health_Local_Data_Hubs_for_Finding_and_Access.pdf 

Format: PDF document

Size: 835 KB

SEEK ID: https://publications.h-its.org/publications/1797

DOI: 10.52825/cordi.v1i.375

Research Groups: Scientific Databases and Visualisation

Publication type: Proceedings

Journal: Proceedings of the Conference on Research Data Infrastructure

Citation: Proc Conf Res Data Infrastr 1

Date Published: 7th Sep 2023

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Registered Mode: by DOI

Authors: Frank Meineke, Martin Golebiewski, Xiaoming Hu, Toralf Kirsten, Matthias Löbe, Sebastian Klammt, Ulrich Sax, Wolfgang Müller

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Citation
Meineke, F., Golebiewski, M., Hu, X., Kirsten, T., Löbe, M., Klammt, S., Sax, U., & Müller, W. (2023). NFDI4Health Local Data Hubs for Finding and Accessing Health Data. In Proceedings of the Conference on Research Data Infrastructure (Vol. 1). TIB Open Publishing. https://doi.org/10.52825/cordi.v1i.375
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Created: 15th Feb 2024 at 19:05

Last updated: 10th Mar 2024 at 15:48

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