COVID-19-Forschungsdaten leichter zugänglich machen – Aufbau einer bundesweiten Informationsinfrastruktur


Public health research and epidemiological and clinical studies are necessary to understand the COVID-19 pandemic and to take appropriate action. Therefore, since early 2020, numerous research projects have also been initiated in Germany. However, due to the large amount of information, it is currently difficult to get an overview of the diverse research activities and their results. Based on the "Federated research data infrastructure for personal health data" (NFDI4Health) initiative, the "COVID-19 task force" is able to create easier access to SARS-CoV-2- and COVID-19-related clinical, epidemiological, and public health research data. Therefore, the so-called FAIR data principles (findable, accessible, interoperable, reusable) are taken into account and should allow an expedited communication of results. The most essential work of the task force includes the generation of a study portal with metadata, selected instruments, other study documents, and study results as well as a search engine for preprint publications. Additional contents include a concept for the linkage between research and routine data, a service for an enhanced practice of image data, and the application of a standardized analysis routine for harmonized quality assessment. This infrastructure, currently being established, will facilitate the findability and handling of German COVID-19 research. The developments initiated in the context of the NFDI4Health COVID-19 task force are reusable for further research topics, as the challenges addressed are generic for the findability of and the handling with research data.


DOI: 10.1007/s00103-021-03386-x

Projects: Scientific Databases and Visualisation

Publication type: Journal

Journal: Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz

Citation: Bundesgesundheitsbl

Date Published: 23rd Jul 2021

Registered Mode: by DOI

Authors: Carsten Oliver Schmidt, Juliane Fluck, Martin Golebiewski, Linus Grabenhenrich, Horst Hahn, Toralf Kirsten, Sebastian Klammt, Matthias Löbe, Ulrich Sax, Sylvia Thun, Iris Pigeot, Wolfgang Ahrens, Johannes Darms, Jörg Henke, Xiaoming Hu, Sophie Klopfenstein, Lisa Langnickel, Bianca Lassen-Schmidt, Hermann Pohlabeln, Michael Lieser, Anatol-Fiete Näher, Markus Scholz, Carina Vorisek, Dagmar Waltemath, Hannes Wünsche

help Submitter
Schmidt, C. O., Fluck, J., Golebiewski, M., Grabenhenrich, L., Hahn, H., Kirsten, T., Klammt, S., Löbe, M., Sax, U., Thun, S., Pigeot, I., Ahrens, W., Darms, J., Henke, J., Hu, X., Klopfenstein, S., Langnickel, L., Lassen-Schmidt, B., Pohlabeln, H., … . (2021). COVID-19-Forschungsdaten leichter zugänglich machen – Aufbau einer bundesweiten Informationsinfrastruktur. In Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz (Vol. 64, Issue 9, pp. 1084–1092). Springer Science and Business Media LLC.

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Created: 29th Jul 2021 at 15:18

Last updated: 15th Feb 2022 at 14:45

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